Resources
GUIDELINES FOR LIVING WITH PULMONARY FIBROSIS
On-Line Pulmonary Rehab Resources
Pulmonary Rehab Personal Pulmonary Rehabilitation using either Zoom or Skype. David Junga and his staff are experts on Pulmonary Rehabilitation and provide individuals sessions over the web.
Pulmonary Wellness On-Line Foundation Pulmonary Rehab at Home and Pulmonary Education. Offers a 6-week Online Pulmonary Rehabilitation Program that is ideal for any individual living with respiratory and/or cardiovascular disease.
Integrative Medicine at Home Membership Program–Sloan Kettering
On-Line Educational/Support Groups
Pulmonary Fibrosis Information by Breathe Support Facebook Support Group
IPF-Idiopathic Pulmonary Fibrosis Support Group
PF Warriors Facebook Support Group for those with PF and related diseases
Professional Associations
Pulmonary Fibrosis Foundation A trusted resource for the Pulmonary Fibrosis (PF) community by raising awareness, providing disease education & funding research.
American Lung Association The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease, through research and education.
PF Warriors PF Warriors is a volunteer group comprised of Patients diagnosed with Pulmonary Fibrosis (PF), Idiopathic Pulmonary Fibrosis (IPF), Nonspecific Interstitial Pneumonia (NSIP) or in a disease category of Interstitial Lung Disease (ILD), Caregivers, Supporters, Families and Medical Professionals.
Books
Pulmonary Fibrosis Journey: A Counselor and Fellow Patient Walks with You. by Kim Fredrickson
Surprised by Tragedy: Finding Hope When Your Days Are Dark. by Tim Cox
Journey of the CareGiver: Battling Pulmonary Fibrosis by Moody RN, MS, Lois
Ultimate Pulmonary Wellness by Noah Greenspan , Mark W. Mangus,
Social Contact