Resources
GUIDELINES FOR LIVING WITH PULMONARY FIBROSIS
On-Line Educational/Support Groups
- IPF-Idiopathic Pulmonary Fibrosis Support Group
- PF Warriors Facebook Support Group for those with PF and related diseases
On-Line Pulmonary Rehab Resources
- Pulmonary Rehab Personal Pulmonary Rehabilitation using either Zoom or Skype.
- Pulmonary Wellness On-Line Foundation Pulmonary Rehab at Home and Pulmonary Education. Offers a 6-week Online Pulmonary Rehabilitation Program that is ideal for any individual living with respiratory and/or cardiovascular disease.
Professional Associations
- Pulmonary Fibrosis Foundation A trusted resource for the Pulmonary Fibrosis (PF) community by raising awareness, providing disease education & funding research.
- American Lung Association The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease, through research and education.
- PF Warriors PF Warriors is a volunteer group comprised of Patients diagnosed with Pulmonary Fibrosis (PF), Idiopathic Pulmonary Fibrosis (IPF), Nonspecific Interstitial Pneumonia (NSIP) or in a disease category of Interstitial Lung Disease (ILD), Caregivers, Supporters, Families and Medical Professionals.
Books
- Guide to Pulmonary Fibrosis & Interstitial Lung Diseases: FOR Patients, Caregivers & Clinicians BY Patients, Caregivers, & Clinicians
- A Matter of Life and Breath: My 7 Step Guide to Overcoming Near Death From Long CoVid and Pulmonary Fibrosis by Lee Fogle
- Pulmonary Fibrosis Journey: A Counselor and Fellow Patient Walks with You. by Kim Fredrickson
- Surprised by Tragedy: Finding Hope When Your Days Are Dark by TIm Cox
- Journey of the CareGiver: Battling Pulmonary Fibrosis by Moody RN, MS, Lois
- Ultimate Pulmonary Wellness by Noah Greenspan , Mark W. Mangus,
Social Contact