Supporting each other in living active and meaningful lives with Pulmonary Fibrosis and other lung diseases
Have you ever longed talk to someone who truly understands what you are going through? Being diagnosed with a rare illness such as pulmonary fibrosis is scary and lonely. We know that it can be fatal, but so is life and aging. The disease progression may be over many years and is highly variable. Many of us are isolated and don’t have others who really understand what we are dealing with. We want live active, productive and meaningful lives while dealing with the realities. There are many wonderful resources for education on our resources page. Facebook and other social media outlets do provide some support, but those connections through dialog with others is limited. Human connection is vital to human thriving, especially with a disease condition.
We invite you to consider joining a Pulmonary Success Circle of 8-10 people to see if it works for you. We meet weekly on Zoom calls, and our groups become like a second family, sharing our strength, experience and hope–celebrating victories and coming together in support when there are challenges. Circles are led by volunteers who are also patients or caregivers there is no cost to our members. All groups are confidential. We do NOT advertise or allow commercial promotion. If you would like to join a circle, use the “Contact us” page to send your name, and phone number and one of our leaders will get back to you.
Pulmonary Success Circles typically consist of 8-10 members. The purpose of the circles is to have a small group of fellow travelers who support each other in their success in managing their lives while dealing with an illness. Circles meet periodically on Zoom video conferencing. We will teach you how to use Zoom so that you can join a circle. The group will not be educational, i.e. no guest experts. It is designed to create a supportive community. As meetings progress, the group becomes more intimate and truly supportive of each other on their journey. Each success circle develops their own agenda and ground rules.
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